In celebration of Ronan Keul

Ronan and Dr. Henry today at his last appointment!

Ronan and Dr. Henry today at his last appointment!

View My Photo Album

Fund Photo Page

Total Number of Gifts: 26
Total Value of Gifts: $1,256.00

Recent Donors

Ronne and Donald

Goergen

Ronan

The Florey Family

In honor of Ronan

Anonymous

Spencer and Marley

Brenda Bryan

Anonymous

Rich Stringham

Full Donor List Opens new window.Full Donor List

In celebration of Ronan Keul

Achieved:
$1,256.00

100+ percent of goal achieved.

This is our way of saying thank you

Six years after it began
with a nuclear bone scan on Christmas Eve,
it ended.
Six years after the wolves bayed at our door
and we held them back with
candles in the bathtub and sorrowful prayers,
it is done.
Five years after our baby finished chemotherapy
for the tumor in his hipbone,
Langerhan's Cell Histiocytosis, LCH,
today was Ronan's last MRI.
He is almost eight years old now.
Today was the last of his 17 MRIs over six years.
Today marked the end of 20 procedures under general anesthesia
each at the gentle hands of Dr. Aubrey Maze
who showed up each time,
like some human version of a Swiss watch.

Today was Ronan's last appointment
with Dr. Michael Henry
the kind, gentle, patient, loving
oncologist
who walked us through hell.

I have marked these past six years in increments of fear,
but also in daily waves of gratitude.
We, in my family, have fallen apart
and recovered over these years.
We have vanished into the walls
of waiting rooms and treatment rooms
and therapists offices and recovery centers.
We have found the light in our heart and grown
more than we thought possible.
We have been burned in the fire
and walked out brighter
and better if not smoldering.
At some points we were ash...cinder...coal.
Kris and I are almost immobilized by the depth of our gratitude for Ro's health and for Phoenix Children's Hospital....
but it is more than that. It is a crashing of grief, relief, gratitude
and a whole bunch of stuff that doesn't have a name.
Words can't really describe this feeling.
We are deeply celebrating this
milestone.

LCH is viewed as orphan disease, because it is so rare that there isn’t a lot of funding for research. Our aim is to celebrate Ronan’s journey and beautiful health by fundraising on this page. All of the proceeds will be earmarked specifically for the LCH fund at Phoenix Children's Hospital and will be used as needed.

You will get a dollar-for-dollar tax credit for your donation.

Even if you make a small donation of just $10 you will be helping.

Please join us in our profound gratitude.

Guest Book

If you would like, you can add your name and a short message to our Guest Book. Thank you.

Sign the Guest Book

Records 1 - 25 of 1,001+

Santo Stubbs
Mon, Feb 20, 2017
thnx for sharing this neat web-site.
my web-site ... minecraft ( %url )

Fermin
Mon, Feb 20, 2017
Hi, excellent web page you've going here.
Also visit my web-site ... tinder dating site ( %url )

Fiona
Sun, Feb 19, 2017
Wow, beautiful site. Thnx ...
my web site: Serta Sleep Excellence Casoria 12" Cushion Firm Premium Gel Memory Foam King Mattress Set with Standard Boxspring ( %url )

Marcus
Sun, Feb 19, 2017
Wonderful page, Stick to the good work. Thanks a ton!
My web page ... annuaire référencement ( %url )

Cindy Wilkin
Sun, Feb 19, 2017
Unbelievably user friendly site. Astounding info available on couple of clicks on.
My weblog wordpress theme ( %url )

Monique McMillan
Sun, Feb 19, 2017
Toy-grade models are not made with any parts that are repairable, replaceable, or interchangeable. A quick guide to car recycling and what happens to the cars ' the most recycled product in the U. Phoenix (muscle car) is a car you use in a race mission (San Fierro Hills).
Have a look at my webpage :: extra money from home ( %url )

Grant
Sat, Feb 18, 2017
Toy-grade models are not made with any parts that are repairable, replaceable, or interchangeable. Nitro remote control cars are solely for outdoor use. First, in case you were wondering, I did not include the R-Class cars because they do not appear to be very interesting.
Feel free to surf to my page On Demand Services ( %url )

Vanita Dettmann
Sat, Feb 18, 2017
You're an extremely valuable website; could not make it without ya!
Visit my web-site blog wordpress ( %url )

Kindra
Sat, Feb 18, 2017
Truly....this is a beneficial webpage.
My blog post Curso de Ingles Mp3 ( %url )

Toni
Sat, Feb 18, 2017
Astonishingly user friendly website. Enormous details offered on couple of clicks on.
Also visit my website: création web ( %url )

Fay Sturt
Sat, Feb 18, 2017
Great web website! It looks really professional! Maintain the great job!
Feel free to visit my webpage free dating sites no fees ( %url )

Elijah Forbes
Sat, Feb 18, 2017
I love this site - its so usefull and helpfull.
Here is my homepage - minecraft ( %url )

Shela Kincheloe
Sat, Feb 18, 2017
Really such a valuable web page.
Here is my blog; free dating sites no fees ( %url )

Mitchel
Sat, Feb 18, 2017
I adore this tinder dating site free search ( %url ) - its so usefull and helpfull.

Noella Baier
Sat, Feb 18, 2017
Sustain the spectacular job !! Lovin' it!
My webpage; minecraft ( %url )

Ken
Fri, Feb 17, 2017
Great job to Tim McGraw who was a winner at last night_s fan-voted American Music Awards. Tim McGraw Tickets ( %url ) won Preferred Country Song for _Humble and Kind. _ After he tweeted, _Thank you to everyone who the very best and to @LoriMcKennaMA with regard to writing such an incredible song.

Audrey Gatling
Fri, Feb 17, 2017
Great job to Tim McGraw who was a winner at previous night_s fan-voted American Audio Awards. Tim McGraw US Tour 2017 ( %url ) won Favored Country Song for _Humble and Kind. _ After that he tweeted, _Thank you to everyone who voted and to @LoriMcKennaMA with regard to writing such an incredible song.

Susan
Fri, Feb 17, 2017
Terrific Web site, Stick to the useful job. Regards.
Look at my page: minecraft ( %url )

Melissa
Thu, Feb 16, 2017
Surprisingly individual friendly website. Great details readily available on couple of clicks.
Here is my page; Food Blender ( %url )

Corine
Thu, Feb 16, 2017
Sustain the excellent job and generating the crowd!
Here is my blog tinder dating site ( %url )

Elwood
Thu, Feb 16, 2017
Thanks, this site is extremely helpful.
My web-site; free dating sites no fees ( %url )

Enriqueta Vinci
Wed, Feb 15, 2017
Sustain the exceptional job !! Lovin' it!
my weblog ... tinder dating site ( %url )

Violet
Wed, Feb 15, 2017
Great looking website. Think you did a lot of your very own coding.
Here is my blog post ... bcei stock quote (binged.it ( %url ))

Ronda Price
Wed, Feb 15, 2017
I enjoy this website - its so usefull and helpfull.
Stop by my web blog: tinder dating site ( %url )

Nona To Rot
Wed, Feb 15, 2017
Incredible, this is a important websites.
My blog: minecraft ( %url )

Records 1 - 25 of 1,001+


If you think this page contains objectionable content, please inform the system administrator.

© 2017 PHOENIX CHILDREN'S HOSPITAL - ALL RIGHTS RESERVED - PRIVACY POLICY. WEB SITE DESIGN BY ENVISIONUP

]]