In celebration of Ronan Keul

Ronan and Dr. Henry today at his last appointment!

Ronan and Dr. Henry today at his last appointment!

View My Photo Album

Fund Photo Page

Total Number of Gifts: 26
Total Value of Gifts: $1,256.00

Recent Donors

Ronne and Donald

Goergen

Ronan

The Florey Family

In honor of Ronan

Anonymous

Spencer and Marley

Brenda Bryan

Anonymous

Rich Stringham

Full Donor List Opens new window.Full Donor List

In celebration of Ronan Keul

Achieved:
$1,256.00

100+ percent of goal achieved.

This is our way of saying thank you

Six years after it began
with a nuclear bone scan on Christmas Eve,
it ended.
Six years after the wolves bayed at our door
and we held them back with
candles in the bathtub and sorrowful prayers,
it is done.
Five years after our baby finished chemotherapy
for the tumor in his hipbone,
Langerhan's Cell Histiocytosis, LCH,
today was Ronan's last MRI.
He is almost eight years old now.
Today was the last of his 17 MRIs over six years.
Today marked the end of 20 procedures under general anesthesia
each at the gentle hands of Dr. Aubrey Maze
who showed up each time,
like some human version of a Swiss watch.

Today was Ronan's last appointment
with Dr. Michael Henry
the kind, gentle, patient, loving
oncologist
who walked us through hell.

I have marked these past six years in increments of fear,
but also in daily waves of gratitude.
We, in my family, have fallen apart
and recovered over these years.
We have vanished into the walls
of waiting rooms and treatment rooms
and therapists offices and recovery centers.
We have found the light in our heart and grown
more than we thought possible.
We have been burned in the fire
and walked out brighter
and better if not smoldering.
At some points we were ash...cinder...coal.
Kris and I are almost immobilized by the depth of our gratitude for Ro's health and for Phoenix Children's Hospital....
but it is more than that. It is a crashing of grief, relief, gratitude
and a whole bunch of stuff that doesn't have a name.
Words can't really describe this feeling.
We are deeply celebrating this
milestone.

LCH is viewed as orphan disease, because it is so rare that there isn’t a lot of funding for research. Our aim is to celebrate Ronan’s journey and beautiful health by fundraising on this page. All of the proceeds will be earmarked specifically for the LCH fund at Phoenix Children's Hospital and will be used as needed.

You will get a dollar-for-dollar tax credit for your donation.

Even if you make a small donation of just $10 you will be helping.

Please join us in our profound gratitude.

Guest Book

If you would like, you can add your name and a short message to our Guest Book. Thank you.

Sign the Guest Book

Records 1 - 25 of 1,001+

Adell
Sat, Sep 23, 2017
Consequently, the makers have set up specialist programs in addition to repair facilities. A quick guide to car recycling and what happens to the cars ' the most recycled product in the U. Phoenix (muscle car) is a car you use in a race mission (San Fierro Hills).
Take a look at my web site :: vacationing ( %url )

Cheri Bugnion
Sat, Sep 23, 2017
Keep up the amazing work !! Lovin' it!
My website - backlinks ( %url )

Regina Andrew
Sat, Sep 23, 2017
Wonderful blog! I found it while surfing around on Yahoo News. Do you have any suggestions on how to get listed in Yahoo News? I've been trying for a while but I never seem to get there! Thanks
Feel free to visit my blog; texas education agency teacher ethics training module 1 ( %url )

Fausto Follett
Fri, Sep 22, 2017
This post is truly a pleasant one it helps new the web users, who are wishing in favor of blogging.
Also visit my web blog: weighted women ( %url )

Hester Hannah
Fri, Sep 22, 2017
Road cars, along with vintage race cars, make the field not seem so limited. This includes vehicles like the Mazda 2, Ford Fiesta, and Citreon C1. Therefore, it will be a wise decision to invest in the new technology rather than relying upon the old technologies.
Also visit my webpage - what the rich don't want you to know ( %url )

Alicia Whitmer
Mon, Sep 18, 2017
Maintain the awesome work !! Lovin' it!
my web blog: Rapid Trend Gainer ( %url )

Quentin Eichhorn
Sat, Sep 16, 2017
Passion the website-- extremely individual friendly and whole lots to see!
my web blog - instacart coupon ( %url )

Kasha Chaffey
Sat, Sep 16, 2017
I appreciate browsing your internet site. Thank you!
my homepage ... instacart coupon code ( %url )

Carmon
Fri, Sep 15, 2017
Le Black Hat SEO ne respecte pas les consignes de Google et des autres moteurs de recherche, tandis que les White Hat SEO les respectent. Les techniques black hat seo sont très efficace mais peuvent également faire pénaliser votre site Internet. Il vaut mieux faire appel à des consultants service black hat seo ( %url ) Hat seo pour bénéficier de ce genre de stratégies SEO.

Angelo
Thu, Sep 14, 2017
Wonderful site you possess right here.
my web page publix home delivery ( %url )

Bernard
Thu, Sep 14, 2017
The Super GT has also been seen at The Strip in Las Venturas. The clear winner in the A-Class at the moment appears to be the Lotus Exige '06, which is a mid-engine rear-wheel drive car that started just within the confines of A-class with a PI of 510. Why are people doing this, when they can opt for a brand new luxury car from the nearest dealership.
Review my site :: ___ ____ ( %url )

Elise Wentworth
Tue, Sep 12, 2017
Many thanks! It is an amazing publix online ordering and delivery ( %url ) site.

Emmett Heyer
Tue, Sep 12, 2017
Thanks pertaining to giving such good content material.
Take a look at my web blog - instacart promo code 2017 ( %url )

Hildegarde De Garis
Mon, Sep 11, 2017
You have got among the best webpages.
Here is my homepage; instacart promo code ( %url )

Beau Hagen
Sun, Sep 10, 2017
Feel free to surf to my web-site - octogenarian ( %url )

Chun Pate
Sat, Sep 09, 2017
The Super GT has also been seen at The Strip in Las Venturas. Nitro remote control cars are solely for outdoor use. Everyone who has ever owned a car will understand what a huge relief that would be in terms of car maintenance.
Feel free to surf to my site - Whitsundays Tour Sailing ( %url )

Kara
Sat, Sep 09, 2017
Consequently, the makers have set up specialist programs in addition to repair facilities. A quick guide to car recycling and what happens to the cars ' the most recycled product in the U. Looking for something to do with your old cars that seem useless for you.
My web site :: Top Nursery in Dubai ( %url )

Major Binder
Fri, Sep 08, 2017
Even new tyres do not completely eliminate the risk of aquaplaning or slush planing, but it is possible to control the car as long as you adjust the driving speed to the conditions. 4 Kitkat OS QUAD CORE GA5163F Android Car Stereo with 8 Inch Capacitive Touch Screen. Looking for something to do with your old cars that seem useless for you.
Also visit my website: Cryptids Guide ( %url )

Deborah Mercier
Fri, Sep 08, 2017
But the greens can at least take comfort in knowing the extent of car recycling. A copy of Project CARS was provided for PC for review. These companies figure out also if they will be using the donated auto for charitable features or grant the car to a human currently being or household members in need to have.
my web page :: Thriller ( %url )

Modesto
Fri, Sep 08, 2017
Over the next few years, with fuel prices expected to steadily increase even more, the sale of small cars is set to rocket. The clear winner in the A-Class at the moment appears to be the Lotus Exige '06, which is a mid-engine rear-wheel drive car that started just within the confines of A-class with a PI of 510. The federal government provides you a proportionate deduction from your taxes equivalent to the complete valued from your car donation.
My web blog boiler repair ( %url )

Nestor Cornwell
Fri, Sep 08, 2017
Ford Fusion: Ford This car looks bold and practical. Cheap Used Cars Online can be easily found as you just have to do a bit of homework by searching it online. The federal government provides you a proportionate deduction from your taxes equivalent to the complete valued from your car donation.
My web-site; Masha & The Bear ( %url )

Casimira
Fri, Sep 08, 2017
thank so much for your internet site it aids a lot.
my blog post - instacart coupon code ( %url )

Verla Wilt
Thu, Sep 07, 2017
Thanks a ton! It is an incredible web-site.
Also visit my blog :: instacart promo code september 2017 ( %url )

Lindsey
Wed, Sep 06, 2017
The main reason for this is that many dealerships are anticipating All New models landing throughout the year. The car market down under displays cars that not only differ in their feature but also the price range. First, in case you were wondering, I did not include the R-Class cars because they do not appear to be very interesting.
my site: Kansas City legal process ( %url )

Rudolph Bieber
Mon, Sep 04, 2017
Thanks a lot for sharing this good web-site.
my weblog ... serwis. portal ( %url )

Records 1 - 25 of 1,001+


If you think this page contains objectionable content, please inform the system administrator.

© 2017 PHOENIX CHILDREN'S HOSPITAL - ALL RIGHTS RESERVED - PRIVACY POLICY. WEB SITE DESIGN BY ENVISIONUP

]]