On Jaunuary 4th 2017, our son Declan Howa 9 months old was admitted to the Phoenix Children's Emergency Department due to a seizure known as status epilepticus. This is a continuous seizure that is very hard to stop. Declan had to be placed in a coma to control the seizure, but even after 28 days in the pediatric intensive care unit we still didn't know what had caused it. Thanks to Phoenix Children's Hospital agreeing to cover the cost of genetic testing we finally had answers as to what was causing Declan's seizures. On February 8th, 2017 Declan was diagnosed with Alpers Syndrome. Which is a progressive neurologic disorder that begins during childhood and is complicated in many instances by serious liver disease. Symptoms include decreased muscle tone with exaggerated reflexes, seizures, and loss of cognitive ability. On May 11th 2017 Declan succumbed to the complications of this disease. He passed peacefully surrounded by love at the Ryan House. We are forever grateful to the doctors, nurses, and staff of both Phoenix Children's Hospital and Ryan House. We have decided to play a role in helping the patients at Phoenix Children’s Hospital by creating a team for the Phoenix Children’s Hospital 5K fun run. The idea that we can do something for others by staying active is at the heart of Phoenix Children’s Hospital 5K.
We have set fundraising and team member goals and would love to have your support. Help us by donating, or even better, registering for the event and joining our team. Together we can GO THE DISTANCE!
Phoenix Children’s Hospital is Arizona’s only licensed children’s hospital and among the largest in the country. In fact, within five years, one in four Arizona children will have received care from a Phoenix Children’s provider.
-More than 19,000 patient admissions
-More than 86,000 visits to our emergency room
-2,600 trauma visits (one of the busiest pediatric trauma centers in the nation)
-More than 135,000 unique patients treated
-Perform more than 16,400 surgeries
-Nearly 300,000 outpatient visits